Still no answers

We still don't have any answers or diagnosis. Carter underwent a cardiac cath on Wednesday. The cath showed that his Mitral Valve is allowing blood to backflow into his left atrium. This is causing increased pressure in his atrium and poor oxygenization of his lower extremities. From all they could see, his heart looked normal and they could not find any cause for the leakage in the valve. So, yesterday he had a transesopageal echo. This was a procedure to take a closer look at his mitral valve to see what was causing the valve to leak. The good news is that his valve is structurally sound they saw no defects. What they did see was that the valve is not shutting or sealing off properly. What they didn't see was any cause for that. They were able to rule out a lot of possible causes but have yet to find anything that could cause it. As our neonatologist has said, his condition is rare and has everyone really looking at everything inside and outside the norm that could cause his problems. Although he does not have a lot of the classic symptoms associated with myocarditis, they decided that the treatment was benign and so last night he was started on IVIG and steroids. On Monday, they will repeat another Echo to see if the drugs have helped at all. We are praying with all our might that is helping. Unfortunately, after the cath he has remained on the ventilator. Not becuase he is unable to come off and breathe on his own, but they want to give his heart a rest and not stress it out as much. This has been difficult for Matt and I. We want what is best for him, but it is very hard to see your little precious one on a breathing machine and with all the IVs. So for now it is a waiting game. Our doctors are doing there best to try to figure out the problem. Matt and I are just taking it day by day.
Matt, myself and our families are very thankful for all the prayers that you all are offering up for our sweet boy! We are hopeful that they will find out what is wrong with Carter and we will all be home as a family soon.
My friend Meredith sent me a quote that we found inspiring and so I thought I would share it. "Never be afraid to trust an unknown future to a known God"